HEA will be having its third all-day online open house on December 4, 2011, from 11am to 11pm Eastern Standard Time. Go here for more details.
It's a great opportunity to get answers to your questions, touch base with other members of our community, and join HEA for only $25 (that day only!).
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Ever heard of hypospadias or epispadias? Few have, which is why a safe and confidential cyberspace was created where anyone can log on and relate freely with others to gain support, information and knowledge.
The Hypospadias and Epispadias Association is open to anyone affected by or interested in the many physical and emotional issues stemming from congenital conditions relating to variances in male genital development.
We also welcome and encourage health care professionals and educators to get involved to both learn from us and to offer their insight and support.
Hypospadias and epispadias are birth anomalies that affect formation of the penis during embryological development. When the urethra (the tube that serves as a conduit through the penis for the passage of urine and semen) fails to develop properly, the urethral opening is formed on the underside (hypospadias) or top side (epispadias) of the penis, instead of at the tip. Physical and emotional problems commonly stem from these conditions. According to a study published by the Centers for Disease Control (CDC) in 1997, approximately 1 in 125 males is born with hypospadias, making it one of the most common birth variances. Epispadias, which is often more severe than hypospadias, occurs much less frequently.
The Hypospadias and Epispadias Association started in 1999 as a forum for men, their families, and friends, sharing information on the internet. HEA has hosted several successful international conferences with members and health care professionals. We have subsequently expanded our objectives to include changing the perception of hypospadias and epispadias and lessening the isolation and stigma experienced by the men and boys living with these conditions.
The Hypospadias & Epispadias Association does not exist simply to help a parent decide if his or her child requires surgery or to help a desperately alone adult find comfort.
HEA brings people together to learn about these conditions and to share our collective experience and wisdom. We are committed to building an organization whose mission is to erase the shame and secrecy of genital anomalies. We will teach ways to build healthy and open communications within families.
Our health care providers will continue to provide excellent quality care as we learn together. Our goal is that hypospadias and epispadias are no longer just talked about in medical offices. We are discovering daily that life with friends is wonderful and that we are no longer alone.
An Adobe Acrobat version of this brochure, laid out as a 3-fold double-sided brochure with photographs and graphics, is available here.
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Hypospadias & Epispadias Association • 240 West 44th Street, Suite 2 • New York, NY 10036 • USA • Telephone 1-212-382-3471
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