HEA Open House Is Coming!

HEA will be having its third all-day online open house on December 4, 2011, from 11am to 11pm Eastern Standard Time. Go here for more details.

It's a great opportunity to get answers to your questions, touch base with other members of our community, and join HEA for only $25 (that day only!).

open house graphic

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Find People Like You

Is there a local support group in my area?

Any information we have about local support groups will be posted in our Other Support Sources section. Currently local groups for bladder exstrophy exist, but groups for people with hypospadias, epispadias, or other disorders of sexual development do not.

If there isn't a local support group in your area, please make use of HEA's message board (registration is simple and free!) to find others in your area who may be interested in starting a group with you. If you are an HEA member, you will soon be able to access the member database from the People page of the website. [Sorry—this isn't working yet.]

I feel alone. Where can I find other people in my situation?

Although genital abnormalities are quite common, they are rarely discussed openly, which makes everyone—individuals and their families—sometimes feel isolated and alone. One of the main goals of HEA is to create a community where people don't feel alone, so here is the place to find other people in your situation. Visit the message board or drop by one of the regularly scheduled online chats, where you will find lots of other people in a similar situation. The message board and online chat are currently open to everyone (HEA membership not required) and are completely free!