HEA's 2010 Conference
This year's conference will be held in San Antonio, Texas, on Columbus Day weekend (Saturday-Monday, October 9-11, 2010). There'll be lots of support, new people to meet, old friends to visit with, stories, sharing, laughter and a few tears, plus real Texas barbeque! The signup form will be online soon.

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The July Newsletter will be posted online very soon.

 

 

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Recommended Reading/Viewing

Click on the link icon (links icon) to open the web page.

Sources marked with an asterisk (*) are highly recommended.

Information Available on the Internet

Videos:

link icon Breakthough in Urinary Surgery

Animations/Graphics:

* Interactive graphics on fetal genital development, hypospadias, and CAH (Hospital for Sick Kids) - Look for the white & orange "Click to Start" button near the bottom of the window to begin each animation:

link icon Sexual Development

link icon Female Genital Anatomy

link icon Male Genital Anatomy

link icon Sexual Differentiation

link icon Congenital Adrenal Hyperplasia (CAH)

link icon Hypospadias

link icon AIS and 5ARD

Pamplets, etc.:

link icon * Hypospadias: Parent's guide to surgery (ISNA)

General-interest books

My Brother, My Son

John Commins

ISMBooks, 2004; 161 pages.

Description (by the author): My son Dominic was born in Melbourne with a peno-scrotal hypospadias condition in 1959 and had countless operations but remained unhappy with himself all his life. So much so that he eventually committed suicide. The book details the suffering he endured in life.  It is a heartfelt story that I really think is worth reading.

From Diapers to Dating: A Parent's Guide to Raising Sexually Healthy Children--From Infancy to Middle School

Debra W. Haffner

New Market Press, 2004; 256 pages.

Recommended by social worker Barbara Neilson, MSW, as an excellent resource to help parents talk to their children about sexual issues. (Link to Amzaon.com)

Beyond the Big Talk: Every Parent's Guide to Raising Sexually Healthy Teens, From Middle School to College

Debra W. Haffner

New Market Press, 2001; 256 pages.

Recommended by social worker Barbara Neilson, MSW, as an excellent resource to help parents talk to their children about sexual issues.  (Link to Amazon.com)

Easy for You to Say: Q & As for Teens Living With Chronic Illness or Disability

Miriam Kaufman M.D.

Key Porter Books, 1995; 292 pages.

Book is written to a teenage audience and includes information that teens might be too embarrassed to ask about otherwise.  (Link to Amazon.com)

Medical texts and dissertations

Hypospadias and Genital Development (Advances in Experimental Medicine and Biology)

Laurence S. Baskin

Kluwer Academic Publishers, 2004; 400 pages.

Medical text on hypospadias.  (Link to Amazon.com)

Hypospadias Surgery : An Illustrated Guide

Ahmed T. Hadidi

Springer, 2003; 376 pages.

Illustrated with color diagrams and photographs.

Full text online here.

The Psychological Implications of Hypospadias

Dominique Salm

Louvain-La-Neuve University, 2003

Read full text online! (English or French)

Hypospadias Doctoral Dissertation

Sharon Kay May

American Academy of Clinical Sexologists

Maimonides University, 2003

Read full text online! (Chapters 1-3, approx. 1 MB) (Chapters 4-6, approx. 2 MB)

Movies in which a character happens to have HS/ES

100 Girls

Directed by Michael Davis (2000)

Teen romantic comedy in which one of the characters (Rod) has hypospadias, which his roommate accidentally discovers.  A short (1-2 min) discussion and explanation follows.  Negative reaction by a girl to Rod's hypospadias is presented as the reason for his misogynistic behavior.  (Link to Amazon.com)

Flirting With Disaster

Directed by David O. Russell (1996)

One of the secondary characters (Tony) mentions that he was not circumcised until 1 year old because he was born with hypospadias, but hypospadias is incorrectly described as curvature of the penis. (Link to Amazon.com)