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Welcome to Our Internet Community

The Hypospadias and Epispadias Association (HEA) is a 501(c)(3) non-profit organization founded for the education & support of people born with hypospadias or epispadias and their families and loved ones.

Although HEA is based in the USA, we invite participation from all people in all countries who have an interest in these congenital anomalies.

We offer resources and support so that people with HS/ES and their families can make informed decisions about surgery, self-esteem, self-acceptance, relationships, and sexuality.

Our message board, chat rooms, shared stories, and conferences ensure that no one needs to feel alone.

Because feelings of guilt and shame are self-destructive and are not based in fact, we provide opportunities to develop pride in ourselves and compassion for others by volunteering to serve our community through becoming members of the board or committees, reaching out to new members, advocating for better care and better choices, and educating the public.

Want to get in touch with us?

Go here.