Our Mission

The Hypospadias and Epispadias Association (HEA) is a 501(c)(3) nonprofit organization founded for the education and support of people born with hypospadias or epispadias, their families, and loved ones. The Association is open to anyone affected by or interested in the physical and emotional issues stemming from these congenital conditions.

HEA is committed to providing the following services to our members, friends and the general public:

  • We create and nourish a community that erodes the isolation and shame brought about by hypospadias and epispadias.
  • We act as a center of information and experience for parents and adults who are considering the available treatment options.
  • We provide a forum for an open exchange of information between the hypospadic/epispadic community and our health care providers.
  • We educate the public at large about the prevalence of these conditions and remove their stigma.