Who We Are

What is HEA?

The Hypospadias and Epispadias Association, Inc. (HEA), is an organization founded in 2000 for the support and education of people born with hypospadias or epispadias and their families, loved ones, and medical caregivers. Although HEA is based in the USA, we invite participation from all people in all countries who have an interest in these congenital differences.

How does HEA help?

The Hypospadias and Epispadias Association, Inc., offers support so that people with HS/ES never need to feel alone. People with HS or ES and their families can use the resources we offer to make informed decisions about surgery, relationships, and sexuality. Our message board, chat rooms, shared stories, and conferences ensure that no one needs to feel isolated, deficient, or shameful.

We provide opportunities to develop pride in ourselves and compassion for others by sharing our stories, reaching out to others in our community, volunteering to serve by becoming members of the HEA board or committees, advocating for better care and better choices, and educating the public.


Click the HEA-Brochure_2018 link to read or download HEA’s two-page trifold brochure and print it out for reference.